Through a survey and series of workshop meetings, the working group determined 11 areas of focus. 50+. CURE CF WITH GENE OR STEM. CELL THERAPIES. UNDERSTAND ...

The strategy will align to the needs and priorities of CF patients, their families, friends and their communities. We're reaching out to the CF community in a.

Announced May 10, more $2.1M in grants aimed at addressing the priorities and improving the health outcomes of people impacted by cystic ...

Identify key targets for therapy that can prevent, halt or reverse CF disease · Optimize delivery of genetic therapy · Develop tools and models to predict ...

7 июн. 2023 г. · In 2018 we published the top ten research priorities for cystic fibrosis (CF), jointly developed by the CF patient and clinical communities.

Enhance primary, community and cystic fibrosis clinic care for patients and families with cystic fibrosis by setting standards and providing additional support ...

The CF team should encourage healthy feeding behaviours early in life to promote a good relationship with food and a positive body image. 5, Pancreatic enzyme ...

21 июн. 2021 г. · Patients may suffer frequent pulmonary exacerbations (PEx) requiring weeks of hospitalization and I.V. antibiotics. PEx cause rapid decline of ...

The community reviewers evaluate applications based on alignment to the CF. Community research priorities, potential impact on the CF community and feasibility ...

▫ Focuses therapy goals on maintaining the patient's lung function at the highest level. ▫ Encourages establishing and maintaining normal physical capacity. ▫ ...