Death in the late stage of Duchenne muscular dystrophy is most frequently a consequence of respiratory failure. Since muscles of ventilation become weakened ... |
End of life care for patients with Duchenne muscular dystrophy (DMD) has become increasingly complex because of new technologies, changes in medical personnel. |
There is very limited evidence about the views of men with Duchenne muscular dystrophy (DMD) and end of life issues including death and dying. |
Many people with Duchenne develop diaphragm weakness at this stage and have difficulty taking deep breaths. Adults may also have trouble coughing and require ... |
It is the most common type of muscular dystrophy in the UK. Those affected usually die in their late 20 s or early 30 s due to cardiac or respiratory problems. |
Children at this stage will have very few symptoms of Duchenne. Parents may notice that they have difficulty climbing stairs, running and keeping up with their ... |
Daytime mouthpiece ventilation is safe, prolongs survival and stabilises vital capacity in Duchenne muscular dystrophy patients. |
Abstract. Understanding the perceptions and experiences related to the end of life (EoL) of boys and men with Duchenne muscular dystrophy from their own ... |
The median age at death has been described as. 18-19 years, with survival to age 25 considered exceptional!.” In about 90% of these patients, death is directly ... |
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