AMWA's goal is to curate a gallery of films about rare diseases and promote screenings of these films to increase knowledge and understanding — perhaps in a way ...

Rare Disease Day (RDD) was established in 2008 by the European Organization for Rare Diseases (EURORDIS) to raise awareness of rare diseases and improve access ...

Raising awareness for patients, families and carers around the world that are affected by rare diseases. What is a rare disease? · Previous Rare Disease Days · 2023 Rare Disease Day

The #UHC4RareDiseases Toolkit provides practical tools to raise awareness and encourage policymakers to address rare diseases to fulfil their commitment to UHC.

29 февр. 2024 г. · The Rare Disease Day campaign will return to its paramount and perennial theme: achieving true equity for 300 million people across the world who live with a ...

6 февр. 2020 г. · We analyze three winning rare disease campaigns that illustrate the challenges and opportunities that come with operating in such a difficult realm.

Get involved with the rare disease community by having rare disease fundraisers, raising money for a cause of nonprofit, or participate in rare disease day.

We want to raise awareness of rare diseases as a first step towards tackling them and improving outcomes for the people and families affected by them.

Rare Disease UK is a long-standing and pioneering national campaign by Genetic Alliance UK that represents and unites everyone in the rare disease community.

Rare Disease Day is the global awareness-raising campaign for the 300 million people living with a rare disease worldwide and their families.