Raising awareness for patients, families and carers around the world that are affected by rare diseases. |
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. Faces of Rare · Light Up for Rare · Shop · Events |
WALK FOR RARE is a solidarity walk to raise awareness about rare diseases in Portugal. The main theme of this Walk is to raise awareness in society about these ... |
This is a great 1 or 2-mile walk for the whole family to get involved in where you can walk side by side with others affected by rare diseases in Connecticut. |
I have a neurodegenerative disease called Friederich's Ataxia, which makes even the simplest of tasks - like walking, writing with a pen or pencil, using ... |
Join NORD on Rare Disease Day! Discover impactful sessions, engaging speakers, and community events. Raise awareness, foster connections, and make a ... |
We also host regular community events and support our patient events as our priority is to ensure that no one affected by rare diseases has to walk this journey ... |
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